Sunday, May 1, 2016


It was around this time 2 years ago that Isaiah and I flew to Seattle and first met with Seattle Cancer Care Alliance. It was around this time 2 years ago that we learned that Isaiah had cancer and that I was pregnant (for the 5th time) with Audrey. This time last year, Isaiah, Audrey, and I were living in a small apartment in Seattle waiting for them to let us go home after all that followed Isaiah's heart failure. What a crazy few years it has been.

This year, things look so much better. We have an amazing 15 month old who keeps us VERY busy. Isaiah finally heard back from the doctors that is is NOT cancer. We aren't sure exactly what "it" is that they saw and biopsied, but we are very happy that it is not cancer this time. Unfortunately during Isaiah's week in the hospital (thank you blood thinners and LVAD for keeping him in the hospital for a week for something that should be MAYBE an overnight stay), not only did the poor guy have to sit in the hospital forever, but once he was ready to actually leave, discharge paperwork signed, bags packed, everything... they came in and told him he'd probably be there for another day. Apparently they did a culture of what was biopsied and they found that he had an infection. Again. An infection that only responds to IV antibiotics. Again. The poor guy has already done 2 weeks and then a separate 12 weeks of IV antibiotics for a different infection during the end of last year and the beginning of this year. Now, he would need IV antibiotics yet again. Which means another PICC line (and believe me when I say, those things are a PAIN in the butt).

Thankfully, we were able to convince them to get the PICC line put in ASAP, give him his first 2 doses of meds, and let him go! It may have been midnight before he was able to leave, but he still got out of there that night. Which worked out well too since he was able to get on a flight early that morning.

While IV antibiotics seriously suck, we are so glad that this doesn't require him to stay in the hospital. We are so glad that he was able to come home. We are so glad that we were able to spend a few hours yesterday, going from park to park with some family to let the little ones play. Isaiah even got on the swings for a bit. It was a lot of fun.

We are trying to not let any of this medical stuff or every day stresses get in the way of living our lives. We want to still take time for date nights and family days. We can't let this stuff run our lives. We can't waste however many days we are lucky enough to have together, thinking about how things should have gone. Yes, SHOULD. Because no one should be diagnosed with cancer, and certainly not at such a young age. No one should go into heart failure ever, let alone in their 30s after battling cancer. No one should have to have SO much bad happen in such a short period of time. But it happens. Every day people deal with stuff, some much worse than what we've encountered. It sucks.

But you can't let it consume you.

You can't allow the circumstances in your life to take over. You have to live your life. You have to have fun. Go on that vacation. Have that date night. Enjoy every moment that you get. Each day is a precious gift. I am so thankful for each day with Isaiah and Audrey. I am so lucky for our family. Speaking of which... it's time to go spend the rest of the day with them.

Thank you for all of the prayers these past few weeks.

Oh, and here is a picture of Audrey yesterday. She's such a happy kid.

No comments:

Post a Comment