Wednesday, April 30, 2014

Another update & travel plans

Talked to the doctors in Seattle and we have appointments there Monday, May 5th. No additional tests have been done... we believe that they will all be done while we are there. No idea yet as to how long we will be there or if it will be our only trip for this or not. Please continue to keep him in your prayers. We really appreciate all of the prayers and support we've received. It means so much to us.

Tuesday, April 29, 2014

Update after Monday appointments

Monday update: Confirmed by radiologist that it is in fact a bone tumor growing out of his pelvis. We do not know to what extent it has taken over the bone. (prayers that it is just some weird tumor growing on his pelvis and not actually taking over or eating away at his pelvis). We will for sure be flying to the University of Washington sometime soon. Not sure when yet... likely in the next few weeks.

At this point there are a few options that the team in Washington can choose from. 1. Go in and remove it. 2. Remove as much as possible followed by chemo and/or radiation to get rid of the rest (especially if it is IN his bone). 3. Chemo and/or radiation to shrink the tumor and then remove it. I'm REALLLLLLY praying for option 1.

One of his younger sisters actually had something like this in her jaw when she was little. It was eating away at her jaw but it wasn't actually cancerous and no radiation or chemo was done. PLEASE LORD LET IT BE THIS and NO chemo or radiation is needed. He really wants to avoid those.

He is truly being so strong through all of this, meanwhile I had a total meltdown at work yesterday. I am happy to have more answers... I just really want them to say "non- cancerous... easy to remove. Let's get it out this week."

Please keep praying. 

Monday, April 28, 2014

Doctor appointments for him today

You know that these types of doctors exist... neurosurgeons, radiologists, oncologists... But you never expect to have to make appointments with them. 

Met with the neurosurgeon last Friday, today with the radiologist and oncologist. We are so blessed that we've been able to get into these appointments so quickly and to have all of this amazing support from friends and family. 

I'm not sure what kind of information or answers we will be able to get today but I pray that it is all good news. So if any of you who read this could please take just a minute out of your day and pray, it would be so appreciated. We desperately need The Lord to give us strength to face whatever this is, wisdom for these doctors, and healing for my amazing husband. 

He really has been great with all of this. While he is in pain from the herniated disk he just keeps saying how if we go to Seattle, he wants to catch a Mariners game while we are there haha. Gotta love a man who hears he is going to need surgery to remove a tumor, and he sees it as an opportunity to watch some sports. :)

Friday, April 25, 2014

Dr appointment... this time not for me...

I don't really know how to start this post. Today was not the day that I thought it was going to be.

My husband has been having some leg and back pain for about a month now. FINALLY got him to go see a doctor for it. He went to a chiropractor and was told that he had a herniated disk. After a week and a half of treatment, the chiropractor decided that he wanted an MRI.

This morning, the husband went in for his MRI. He said he knew that something wasn't right when they pulled him out of the machine, injected some dye, and sent him back in. After the MRI was finished he was told to go see his doctor to go over the scans.

This is where we KNEW it was bad. They discovered a tumor on his MRI scans. Completely unrelated to his back injury and thankfully it does not appear to be attached to his spine at all. An hour and a half later, we were meeting with a neurosurgeon.... Wow... that's something I never thought I'd say. He said he can't tell what it is exactly (benign, malignant, etc). He will be ordering more scans next week to make sure that there are no other tumors in his body but apparently this one is about the size of a large apple... and it really is. I saw the scans. They were amazed that it was that large and that he had NO symptoms. It appeared to be contained. It literally looked like a ball on the scans.

So we don't know yet if it is benign or not but those few things sounded more on the happy side of things... considering the entire situation. The other thing is that so far we've been told that we will probably have to fly out of state for surgery. Oh! and fun fact... they said it looks like it has been growing for years now... greeeeeaaat.

Thankfully we should know more next week and we have some awesome friends with the right contacts so we hope to get this thing gone ASAP. Thank goodness for hurting his back, or we wouldn't have had the MRI to discover this giant tumor.

God really does know what we need. He knew that to discover this, the husband had to be in pain for awhile to get his stubborn self to a doctor.

Please keep us in your prayers as we navigate this new journey that we have just started. We really are going to need it.

Oh and look what arrived today. Good timing I think. It's a reminder we will need. 

Thursday, April 17, 2014

Another appointment

Just had what has become my monthly appointment with my RE. You know, the one I always talk about how freaking amazing she is. I love working with her. Well today I went in to see how my follicles are doing this month, great by the way. I had one at 19mm and one at 16mm and she said my lining looks amazing.

Then came the sad news... She's leaving the state in 2 weeks. I seriously was just totally caught off guard by that. Her husband is military and they are being stationed somewhere else. The office has been sending out letters to her patients but she wanted to make sure that I knew. Which I didn't. Talk about a serious blow to what was great news. 

She has given me a referral to an RE in a different office who she believes will be on the same page with treatment. She also said she's a huge advocate for women dealing with recurrent pregnancy loss. All in all, she sounds awesome. But I'm reallllly hoping I never have to use my referral. I'm hoping that this month is the month. 

I'm doing the trigger shot tomorrow night, this time it's the hcg shot instead of the ovidrel that I used last month. No pre-filled syringe this time so this should be interesting. :)

While I'm super excited that everything is looking good for this month, I'm really sad that my dr is leaving. I really like her. Not to mention, if I do end up having to use that referral, that'll probably mean May will be a break so that I can meet with the new doctor. 

Here is to hoping that I won't need that referral! :)

Thursday, April 3, 2014

Can you relate?

Alright ladies... can you relate? These are a few things that sometimes make me want to cry, make me crazy but mostly I just have to laugh because if I don't, it's just sort of pathetic.

  • The amount of money spent since starting the TTC journey on ovulation and pregnancy tests... dear goodness!!! I mean seriously! Had I known that I'd be buying them month after month after month... I'd have bought them in bulk from amazon or costco. (do they even sell those at costco? lol)
  • The number of times that we buy the smallest pack of tampons because I won't need them after this month for nearly a year.... and we all continue to do this month. after month. after month. Another item we'd have saved money on by buying in bulk forever ago. 
  • The number of times we've turned down a drink because "Well I don't know if I can drink right now." And then discovered, yep... could've had that drink.
  • The poor people around us who had to deal with us while we either cut back or totally cut out caffeine. I mean really!!! I LIVED ON CAFFEINE! Now, decaf all the way. Getting to this point... not so pretty.
  • The number of months we've thought "Oh this is THE month. It has to be because my first day of my 2nd trimester would be my birthday and my due date would be on the 10th of the month which is the 10th anniversary of our first date which also happens to be my aunt's birthday. Not to mention I have all of the symptoms!" It is meant to be.
  • Symptoms... oh geeze. The symptoms. Now, whether some of our "symptoms" are real or imaginary could be debated for hours. But what we do know is that EVERYTHING has been classified as a "symptom" by someone on some website. I mean everything from being overly emotional, craving certain foods, bloating (oh any of these sound like pms symptoms to anyone else? lol), sore boobs (induced by checking every 5 minutes to see if you have sore boobs), excessive burping (can't explain that one BUT I have read that some people said it was a symptom that they experienced when pregnant). And let's just all take a moment to think of those amazing people in our lives who sat there and listened to us talk out every symptom that we have and why we just KNOW it is this month. 
  • Back up to talking about those dang tests... Can we all agree that those things are soooo dang overpriced?! I mean really... preying on the desperation of overly emotional women much?!!?! Can you even count how many darn sticks you have peed on in the past year?
  • Speaking of those tests... now do we stare at them the entire time until the timer goes off? Do we not look until it is done? We wouldn't want to jinx it you know. Oh! and don't even get started on how we decided when to test. If I had any amount of self restraint I could probably have saved a lot of money on tests haha. But let's face it, if we can know today... why would we want to wait?
  • Now for the blood tests... I'm pretty sure you could fill an entire person with the amount of blood that I've had drawn for every blood test ever imagined. I was never good with needles... now a blood draw, eh... that's nothing.
  • The time spent waiting for the phone to ring with the results of said blood tests. Personally, mine always came back 100% normal so this was frustrating for me. All normal means we have NO clue what the issue is. However, for some of you ladies... these tests have resulted in answers. Yay answers! :)
These are just a few of the things that I've thought about lately and just laughed because it truly is sort of ridiculous. All of the things that we do during the journey to baby...  We are some crazy creatures. I can't even begin to tell you the look on people's faces if/when they hear that I have actually torn apart my fair share of digital tests... just to see if there is a line but it's just not strong enough to read as "pregnant" on the test. Don't judge! It could totally happen.

I'm about 99% sure that this month was not my month but that is okay. There is always next month. I am lucky enough to have some seriously supportive people around to remind me that it isn't time to lose hope. God has a plan for me, I'm just waiting to find out what exactly that is.

Congrats to all of you ladies who finally got your BFPs or got to see little heartbeats recently. And best of luck to the rest of you still plugging along in your TTC journey. I'm right there with you! :)